Brooklyn turned 2 months old yesterday! We had a hectic day, but it ended well with some friends coming over to celebrate with cupcakes. We are very thankful that we’ve had 62 days with our sweet Brooklyn!
Corrie and I have been cruising along fairly well over the past couple of weeks. There have definitely been good and bad days – both emotionally for us and with Brooklyn’s health. Brooklyn’s bad days have really been manageable and mostly ‘normal’ baby stuff. We had a reality check today at our regularly scheduled appointment with Dr. Caldwell, our pediatrician. He ran some blood work which came back showing that Brooklyn’s red blood cell count was low. It wasn’t low enough to sound an alarm, but low enough to catch all of our attention. Dr. Caldwell informed us that we will continue to monitor this and will likely have to make some more decisions about her care sooner rather than later.
This was a reality check because Corrie and I have enjoyed the complacency that has come as a result of a couple slow weeks. We’ve settled in to a groove and her diagnosis hasn’t seemed very real. As I’ve said in a previous post, this is our ‘new normal’. Although we have oxygen tanks, feeding tubes, and other medical supplies in our house, life was getting fairly comfortable. Today was different as we came face to face with the very difficult emotions and types of decisions we faced while in the NICU…all of which were all too familiar. Her diagnosis and the fragility of her life were center stage again. We think about these things every day, but they seemed like they would happen several months from now…at least we hoped.
So…we are very thankful that we have had the privilege of 62 days with Brooklyn, but we are really scared that we won’t have a lot more. I don’t want to give the impression that Dr. Caldwell, Corrie, and I feel like she only has a couple more days because we don’t feel that way. A week ago we all had the discussion that we were hoping that we’d have at least 4 more months (6 total) with her, but after today, I feel like 1 more month may be more realistic. That being said, these are all guesses. The good news is her oxygen saturation, heart rate, and other vitals look good. We’ll take it!
We’re scared. We hope for many more days.
Please pray for:
-Brooklyn’s red blood cell count rises
-Corrie & I to have clarity, wisdom, and strength if we have to make some difficult decisions in the next couple weeks.
-All 3 of us to stay healthy and avoid the flu, RSV, etc.
-Joy & laughter with Brooklyn every day.
Thank you all so much. We have been overwhelmed by your love and support!
2 Month Birthday Party
Corrie & Brooklyn enjoying a wagon ride in the TX Hill Country